Supporting People with Palliative Care Needs

Margaret’s story – training for professionals

The Macmillan Cancer Learning Disability Project are providing three opportunities to attend a session training trainers to deliver story based learning using Margaret’s story. Margaret is a lady with a learning disability, she tells her story from cancer diagnosis through screening, treatment, recurrence and palliative care. Margaret’s story allows participants to think about their individual and organisations roles and how they effectively support people. Following the training individuals will have the skills and resources to use Margaret’s story to raise awareness of communication, exploring what good care looks like and how we can better support people like Margaret.

Why:

The 2018 LeDeR report tells us people with a learning disability have poorer health dying up to 27 years younger, cancer is often diagnosed late, there are issues of diagnostic overshadowing, poor access to investigations due to lack of reasonable adjustments and assumptions of ability or willingness to tolerate tests. We are all responsible for ensuring people are treated fairly and have good access to health and social care.

Who is it for:

People working within; primary and secondary care, social care and third sector organisations.

When:

Thurs 5th March – 10:00am -12:00. People First Conference Ctr, Milbourne St, Carlisle CA2 5XB

Wednesday 11th March – 09:30 – 11:30am. Waterfront 4, Goldcrest Way, Newcastle NE15 8NY

Monday 16th March – 9:00 – 11:00am. Waterfront 4, Goldcrest Way, Newcastle NE15 8NY

To register email Amy: amy.hocking1@nhs.net

For further information click here.

We are immensely grateful to Margaret for sharing her cancer journey and giving us the opportunity to stop and think about how we can better support and work with people.

Understanding the patient experience – Margaret’s story

This film and resource pack aim to provide education and increase awareness, allowing people to think about their individual rolls within health or social care and how and when they offer support to individuals.

We are immensely grateful to Margaret for sharing her story and giving us the opportunity to stop and think about how we can better support and work with people with a learning disability.

This film and resource pack are aimed at people working within: primary and secondary care, social care and third sector organisations who support individuals with a learning disability.

If you are viewing the film independently we ask you to look at the learning points within the Margaret’s story resource pack. The resource pack also includes a session plan, so the film can be shared as part of a team meeting or education event. To access a copy of the resource pack please click here.

To view the full length version of Margaret’s story (approximately 11 minutes) please click here.

To view the short version of Margaret’s story (approximately 7 minutes) please click here.

Margaret’s story education and resource pack

The End of Life Care Programme

This e-learning programme End of Life Care for All (e-ELCA) aims to enhance the training and education of the health and social care workforce so that well-informed high quality care can be delivered by confident and competent staff and volunteers to support people who are in their last days of life. For further information click here.