Public Involvement Resources


National Patient Experience Cancer Survey –

NHS Patient Experience Framework –

Health Foundation – Measuring patient experience –

Kings Fund  – Exploring the impact of patient experience data in NHS hospitals in England –

International Journal of Public Health – What will it take to get the evidential value of lay knowledge recognised?


NHS England – A guide to making information accessible for people with a learning disability –


Macmillan – Cancer Inequalities Report –

CRUK – Smoking Inequalities Report –

Macmillan project report. Improving cancer services and experiences for people with a learning disability in the North East and Cumbria (October 2017 – April 2019) – Learning Disability and Cancer Project Report

Capability & Capacity

Kings Fund Film – How does the NHS work? –

Kings Fund Document – Patients  as partners –

Kings Fund Film –  Patient and Public Engagement –

Finance and expenses information –

NHSE Policy for Patient & Public Involvement –

Systems & Tools

NHS England – Bite size guides to participation –

NHS England – Bite-size Guides to Patient Insight –

Scottish Health Council –  Involvement Toolkit –

Best practice guidelines – for effective engagement of people with a learning disability in projects – Download Best Practice Guidelines

The Manchester Community Engagement Toolkit is a practical guide to carrying out community engagement – ManchesterCommunityEngagementToolkit

Piecing Together Patient Engagement – a short film, produced by Macmillan about the benefits of engaging people affected by cancer in the development, of cancer services – Click Here

Toolkit for setting up a cancer patient and carer group – Click Here

Commitment & Accountability

NHS England – Bite size guide to governance for participation –