Public Involvement Resources

Evidence

National Patient Experience Cancer Survey – https://www.quality-health.co.uk/surveys/national-cancer-patient-experience-survey

NHS Patient Experience Framework – https://www.gov.uk/government/publications/nhs-patient-experience-framework

Health Foundation – Measuring patient experience – https://health.org.uk/publication/measuring-patient-experience

Kings Fund  – Exploring the impact of patient experience data in NHS hospitals in England – https://www.youtube.com/watch?v=DH5ihe8F-yg

International Journal of Public Health – What will it take to get the evidential value of lay knowledge recognised?  http://www.northerncanceralliance.nhs.uk/wp-content/uploads/2019/06/Lay-knowledge-paper.pdf

Communication

NHS England – A guide to making information accessible for people with a learning disability – https://www.england.nhs.uk/wp-content/uploads/2018/06/LearningDisabilityAccessCommsGuidance.pdf

Inequalities

Macmillan – Cancer Inequalities Report – https://www.macmillan.org.uk/documents/getinvolved/campaigns/appg/britainagainstcancer2009/cancerinequalitiesreport.pdf

CRUK – Smoking Inequalities Report – https://www.cancerresearchuk.org/sites/default/files/stop_smoking_inequalities_2018.pdf

Macmillan project report. Improving cancer services and experiences for people with a learning disability in the North East and Cumbria (October 2017 – April 2019) – Learning Disability and Cancer Project Report

Capability & Capacity

Kings Fund Film – How does the NHS work? – https://www.youtube.com/watch?v=DEARD4I3xtE

Kings Fund Document – Patients  as partners – https://www.kingsfund.org.uk/sites/default/files/field/field_publication_file/Patients_as_partners.pdf

Kings Fund Film –  Patient and Public Engagement – https://www.kingsfund.org.uk/events/patient-and-public-engagement-where-next

Finance and expenses information – https://www.england.nhs.uk/participation/resources/finance/

NHSE Policy for Patient & Public Involvement – https://www.england.nhs.uk/wp-content/uploads/2017/08/patient-and-public-voice-partners-policy-july-2017.pdf

Systems & Tools

NHS England – Bite size guides to participation – https://www.england.nhs.uk/publication/bite-size-guides-to-participation/

NHS England – Bite-size Guides to Patient Insight – https://www.england.nhs.uk/publication/bite-size-guides-to-patient-insight/

Scottish Health Council –  Involvement Toolkit – http://www.scottishhealthcouncil.org/toolkit.aspx

Best practice guidelines – for effective engagement of people with a learning disability in projects – Download Best Practice Guidelines

The Manchester Community Engagement Toolkit is a practical guide to carrying out community engagement – ManchesterCommunityEngagementToolkit

Piecing Together Patient Engagement – a short film, produced by Macmillan about the benefits of engaging people affected by cancer in the development, of cancer services – Click Here

Toolkit for setting up a cancer patient and carer group – Click Here

Commitment & Accountability

NHS England – Bite size guide to governance for participation – https://www.england.nhs.uk/wp-content/uploads/2014/03/bs-guide-govern-part.pdf