Living With and Beyond Cancer
50% of people diagnosed with cancer in 2010-2011 will survive 10 years or more.
Due to developments in diagnosis and treatment of the disease cancer survival rates have doubled in the last 40 years. There are currently 2.5 million people living with cancer in the UK however this is set to rise to 4 million by 2030. This means more people are living with the disease, its side effects and the consequences of its treatment for many years.
To improve cancer care and outcomes for people by 2020 the National Strategy for Cancer: Achieving World Class Outcomes set out recommendations for health systems to enact. These are outlined on the plan on a page but can be summarised as:
- Increase access to and commission all elements of the recovery package for all patients with a cancer diagnosis by 2020
- Increase access to and commission stratified follow up for all patients who have had a diagnosis of breast, colorectal or prostate cancer
- Support people stratified as low risk to self-manage and reduce hospital based follow up
- Improve quality of life for people living with and beyond cancer and develop a quality of life measure to support people living with and beyond cancer
Across the North East and North Cumbria the Cancer Alliance is supporting Trusts and CCGs to implement these recommendations. The projects delivered to meet theses recommended actions are categorised below:
- Commissioning Toolkit – a resource for commissioners
- Recovery Package – interventions to improve aftercare
- Stratified Follow Up – ensuring patient-centred follow up
- Late Effects – supporting patients with impact of cancer treatment
- Evaluation – evaluation of the LWBC approach
NCA is supported in delivering the LWBC work programme by following voluntary sector organisations:
- Catalyst based in Stockton works with other VCSE partners across Tees Valley and Darlington to embed LWBC into local systems by supporting the implementation of the Recovery Package, including delivery of Health and Wellbeing Events. They act as a referral point for practices when patients identify needing financial/advocacy/health and lifestyle advice and social support. CatalystStockton.org
- FACT (Fighting All Cancers Together) based in Gateshead provide peer support, practical and emotional support for patients in the community LWBC, at community hubs across North Durham, South Tyneside, Sunderland, Northumberland and North Tyneside. fact-cancersupport.co.uk
- Age UK work across the NCA foot print, to provide support completing Holistic Needs Assessments which identifies support required for individuals LWBC. They assist in signposting to services in the community which help maintain people’s health & wellbeing such as leisure & learning, social groups, advocacy, financial maximisation etc.ageuksunderland.org.uk
- Cumbria CVS work in partnership with primary, secondary care and voluntary services to support LWBC in North Cumbria. This includes supporting the completion of HNA and signposting to services in the community to meet people’s health and wellbeing. cumbriacvs.org.uk
- Macmillan Support at North Tyneside and Northumbria are supporting the implementation and completion of the eHNA (electronic HNA) allowing patients to complete the questionnaire on a touch screen tablet which is then sent through a secure website to the clinical nurse specialist.
- CAB Darlington #cancerwecan work closely with CDDFT at Darlington Memorial to assist patients in meeting their health and wellbeing needs through completion of HNA, and signposting to local services.